Friday, May 8, 2015

Update to May Update

The day after posting my previous post, May Update, I received a call from the lab at my rheumatologist. Rachel first asked if doc had talked to me about my lab results and I immediately start thinking the worst. I told her no and she went on to explain that my blood work shows abnormally high disease activity. They would like to do ultra sounds and then look at either adding or changing meds. 
I will see where this next adventure takes me ... hopefully it gets me back to feeling like riding again!   

Thursday, May 7, 2015

May Update

I can't tell you how many times this has happened, I know I'm not the only one this happens to ... I went in Wednesday for my 12 week rheumatologist visit. I felt surprisingly good for working 9 days in a row and after blood work, examination and talking with me told me I was doing very well for how long I have lived with RA plus my age.  When I woke up the next morning, both hands and all fingers were swollen and hurt severely. I went on to work that day but could not close either hand to make a fist. Friday was better, I could close my right hand up ... not the left though. It's just frustrating to go see the doctor on a good day when just before or immediately after flare up.

I guess overall I'm doing okay but having a lot of little problems. I am starting to think of changing meds again and hope for the best. I hate changing meds but I also hate thinking that this is the best I am going to be for the rest of my life. Of course that could be a short time ... I might get hit by a train on my way to work tomorrow. Bwahaha, sorry ... couldn't help it. 

I have had some balance issues while on my bike and it has me sort of gun shy for the time being. I actually dropped my bike at a stop sign in a one horse town late last year and strained and strained trying to pick it up, to no avail. Just as I was about ready to give it up a young guy pulls up (seriously the only vehicle I saw in the town up to now) and he jumps out to help me pick my bike up. As we are both straining he looks at me and says, "damn! this thing's heavy".  I thanked him and pushed it off the side of the street when lo and behold a police car drives by slow looking at me. Had we been slower or he faster, I would have likely been issued a ticket. A fellow ADV rider dropped his bike last year (while in Oklahoma - where I was at the time of this story) and a police car pulls up so he thought he was going to help him pick his bike up. Instead he writes him a failure to maintain control ticket, gets in his car and leaves him with his bike still on its side in the road. True story.  Anyway, I'm not selling my bikes, but you know it's pretty bad if I have only rode 3-4 times all year.