Monday, April 17, 2017

Full Frame Cometh

I'm doing ok with the switch to Cimzia. Not great ... just ok. I have been having up and down weeks with all of the spring storms coming through Oklahoma. What I'm dreading is the start of mowing season. Our yard is three acres with a lot of trees and fence to weed eat around. I have put this off about as long as I can.

I have still not sold my last bike yet. I am riding it around the block every couple of weeks to keep it up. I am in the process of buying a full frame Nikon for milky way season this year. I have been shooting a lot of lightning over the past month. I am feeling pretty good about lightning now, having several good shots with each storm that passes over us. In the past, I had shot  ... maybe five good shots all of my life. I am shooting 5-10 keepers with every storm now. I'm loving getting back into photography as a distraction.

Monday, March 20, 2017

Just A Puppet

I fought hard the first 12 years after being diagnosed. Back up ... I was lucky the first 12 years after being diagnosed. The last 3 years has been pretty brutal on me.
At diagnosis, after being reduced to just barely being able to walk, the drugs took over and did a remarkable job of battling my immune system and awarded me with many extra years of active life. I would read how others struggled with this disease, diagnosed around the same time to even after I was and were not able to do much if any. I, despite living with this disease, didn't get it! I know that everyone is different and what works for one may not work for the next person. I'm not talking about that. I'm talking about being faced with the fact that whatever med you try ... nothing really works any more. I am just now coming to realize how fortunate I have been the first 12 years or so after diagnosis. I rode hardcore off road for about 4 years before that got to be too painful. I then switched to dual sport riding which is a mix of hardcore off road and dirt roads. I rode that for the next 3-4 years before having to go to adventure riding. I wouldn't have enjoyed this style of riding 15 years ago, especially if I had remained healthy, but it's been a lot of fun. But that too has slipped away from me. Change ... that's what we do to keep enjoying ourselves living with this disease. The cold hard fact is that after 15 years, I'm merely a puppet to this disease. It is calling the shots now but I'm still enjoying the good days that it gives me.
RA was killing me Sunday morning but I drug myself out of bed to go see the sunrise anyway. I went out to a site that I had scouted on the Arkansas River for a sunrise. Nothing like having anglers (the guys that get up in the middle of the night to put a boat in the water) look at you like you're crazy for dragging a camera and tripod out of your truck in the middle of the night. Then using a flashlight to walk down on the bank of the river!
I will leave you with a few photos that I have shot over the past couple of weeks.


Wednesday, February 22, 2017

Photographs From the Edge

We are looked down on in todays society. I actually had a guy say to me once, "oh, that's what is wrong with you". We work hard to maintain an outward normal appearance only to be judged often times as fakers or attention seekers.
I am still struggling to deal with RA stealing my riding away from me. I have thrown myself back into photography as a distraction. While it helps ... it's just not the same as riding. I know the sooner I can accept no longer being able to ride, I can move on. I'm trying.
I have gone back to injections, the infusions just have not worked well for me. Cimzia doesn't hurt like the Humira injections did. Too early to tell if it's going to help much. Honestly after living with this for 14 years now, maybe I'm just cynical, I don't really expect much help or relief any more. I'm not depressed or feeling sorry for myself, I will be surprised if there is much of a difference.
Below are a few photos I have taken over the winter. Hope you enjoy them.