Tuesday, January 29, 2013

Rheumatoid Awareness Day

Rheumatoid Patient Foundation (RPF) announces the establishment of Rheumatoid Awareness Day to be held each year on February 2, giving people with the chronic illness known as rheumatoid arthritis, or rheumatoid disease, a day of recognition. Because the disease is commonly presumed to be a type of arthritis, awareness is lacking, causing problems with disability accommodations, clinical care, healthcare reimbursement and research funding.  For information on how to support Rheumatoid Awareness Day, visit http://rheum4us.org/rheumatoid-arthritis-awareness-day/.
How great is that, we finally get our own day and some much needed recognition that it is a disease and not "just arthritis".   My flare is easing up again.  Last post was about corresponding with a newly diagnosed patient and not long after I had relived some of my thoughts and emotions after my diagnosis while writing to her, I experienced pain that went all the way back to my  pre-diagnosis days.  My left hand (wrist, hand, fingers and thumb) started swelling.  Soon the joints were warm and stiff.  The next day they felt hot and I could barely use them, soon I was in constant pain and could not sleep.  The hand would wake me within an hour after falling asleep.  It got so bad that I could not even use the computer last week.  Then last Thursday, after 8 days, it began feeling better.  I was once again reminded how fortunate I am, most days, and how many people with RA live everyday.

I felt good enough to head out for a good long ride Monday and test my left hand out.  Greg had been hounding me to go ride so I told him to be at my house at 10 am.  Greg's attention to time leaves a lot to be desired.  He needed to work on his bike and was wanting to use my garage and tools so I thought if he could be here by 10, we could leave by 11.  At 10:30 he calls and hasn't left his house yet.  Randall loads up and heads on out, not wanting to stick around for Greg.  Greg finally shows up and we leave at the crack of noon.  It was 72 degrees, high gusty winds and we ran through some light rain twice, just missing heavier showers a couple of more times.  We found a cool old abandoned rock building that was most likely a general store at one time.  We also crossed the longest bridge in Arkansas at 1.6 miles long over the Arkansas River.  On the way back I ran across a viscous dog.  He charged into the road, barking and ran out in front of me to cut me off.  Most times, if you hold your line, they will just run along side you and bark.  Not this guy, he jumped down on the asphalt with his back legs still up in the air and was barking and showing his teeth ... square in front of my front tire as I was still rolling toward him.  He finally moved at the last second.  Oh ... I forgot to mention, he must have been all of 6 pounds!  Bwahaha ... little dog syndrome big time.  Not bad at all, Jan 28th, 72 degrees, 217 miles and minimal pain ... a good day.
My KLR isn't sexy, doesn't have amazing suspension or brutal hp, but is still fun to ride.
A beaver dam we rode by yesterday.
Old building just outside of Coal Hill.
Longest bridge in Arkansas at 1.6 miles long.
Greg with his 1200 GS.  Nice bike!


mary said...

Yeah for a day for us!!

70 degree day in January...we are having some crazy weather this year aren't we? We went from 70 to 22 over a two day period. Looks like you had another banner ride. I love that you can just run across all of these old houses and bridges. Pain has relegated me to the pool for now. Hoping spring turns things around. This getting older heaped on the RA kinda sucks.

Terry said...

It has been about normal for winter here. We normally have a few 70 degree days in January and February. The next day following our ride we had severe storms with 2 tornadoes touching down. That night it dropped back down to 28. The cold temps seem like they hurt me more every year. Hope you get plenty of spring rides in this year.

Lana said...

Good to hear that your flare is easing up. I have been having flares too. I am fairly certain the crazy weather is to blame – not that I don’t mind those spring like days in January. Good to hear that you were able to have a ride in January. Like you, I enjoy those nice warm breaks this time of the year. I try to visit Amish country when it is nice and it offers me the relaxation I need this time of the year. Also, you know how things get better with age? I think your KLR is sexy and I would not trade it in for a younger nice model like a 1200 GS. ;-) Just sayin… you put a lot of miles and memories on it on the KLR – that’s all.

Terry said...

This winter has been extra rough on me but I love the nice warm days we occasionally have! I only relax on my bad days, The rest of the time I keep moving. Thanks Lana, thats the nicest thing anyone has ever said about my KLR. I plan on putting a lot of miles on it this year ... if my RA will cooperate. Hope we all experience an early spring this year and get some relief from the cold!