Sunday, December 30, 2012

Winter ... ugh

It has been an unusual year to say the least.  We had almost no winter followed by the mildest spring I can remember in a long while, we did not have a single tornado get close to us ... until December 19th.  It touched down a few miles east of us but we lost numerous shingles from the front (west) side of our roof.  We got it repaired on the 21st, just three days before rain, ice and snow hit us.  The cold and damp conditions have impacted my body with above normal to intense pain over the past two weeks.  I hate winters now, with the exception of going to work, I stay inside - often in bed or under my electric throw in the recliner.  The cold weather turns me into a prisoner inside my own home.  It's no secret that I would rather be outside but I have learned to accept it and take the down time to recharge myself for better days to come. 

I feel confused about how the Humira is doing.  It does well for a while then I have periods where I don't do so well with it.  I have decided to eat better starting January 1st and document my year and see if there is any correlation between eating the right/wrong foods and exercise with my treatment.  If it is me, I can correct that.  If it proves it does not make a difference, I will talk to my rheumatologist about pursuing a different treatment.  I hate changing meds but I also hate hurting, especially if there is something that may work better for me.

I wish everyone a safe and happy new year ... and one filled with many pain free days!

btw, we all need to laugh.  Couldn't resist throwing this on this post.

9 comments:

Squirrel said...

Happy New Year Terry! Hope the winter blues ease soon (I get them bad too!). Here's to a better 2013!

Lana said...

I know what you mean about the cold weather making you feel like a prisoner. The diet changes have made a difference in my life too. I stay away from anything carb – bread, pastas, rice, etc. and it has been very helpful. I have lost weight too which is great in addition to fewer symptoms. Despite that, the colder weather has been harder on my joints too. I hope 2013 is filled with much happiness and good health for you, my friend. Thanks for the laugh!

livingwithra said...

Hi Terry,

Happy New Year! Sorry to hear that you're questioning Humira. That happened to me last year with Humira first, then Orcencia. It seems to come on slow and you find yourself wondering. It finally took my wife and doctor to convince me...sometimes it takes others who see you everyday to give you an honest opinion. Anyway, I hope you get it figured out so you can keep riding!
Andrew

Terry said...

Hello Squirrel. I have grown to dread winter now, I used to love riding during the winter months, especially in the snow. Seems most RAers get the winter blues, and hope it is a short winter for all of us.

Lana, I have tried diets for RA in the past with limited results, perhaps I wasn't dedicated enough. Good for you for sticking to it and on the weight loss, I could stand to lose a pound or 20! lol Glad you got a laugh out of the pic, I loved it.

Andrew, I have noticed my up and down success with it over the past 6 months so I am going to buckle down and watch it for the next 3 months. I see my rheumatologist in March so I should be able to talk to him about it by then with some data to back me up. I will never give up riding, I'm just not able to go any day that I may want to. I have learned to accept that and live for the good days. I hope 2013 will be easier on us all.

mary said...

Happy New Year Terry!! I had the same problem with the Humira. It worked but then I kind of felt it wasn't working as well but maybe it was working. Know what I mean. I finally decided I could do better and switched to Enbrel and have done ok on that for the last year. I find it very hard to make a change because I'm always afraid that the new drug may not work as well as the old drug even though the old wasn't working that great.

Winter has finally blown in here on the east coast and it seems like we went from balmy to fridged in a day. Like you I really have grown to dislike winter. Here's hoping for a mild snowless winter for all who want it.

Cathy said...

I hope you will post your findings on all things related to food, either good or bad. I am interested to hear what you discover.

Happy New Year!

Terry said...

Mary, I know exactly what you mean! I was on Enbrel for the first 5 years after being diagnosed. I wish it still worked for me. Thats why I haven't said anything yet about switching meds to my doc. Plus, if it can be controlled better with what I eat, I can correct that easily. I hope winter is fast and easy on us this year. I know you are ready to get outside just as I am. Hang in there.

Cathy, I will post them in a couple of months. I am hoping that eating better can help the Humira work better, we will soon see. Hope we all have a better 2013 ahead of us!

Kim said...

Yes - Winter sucks. We have 16" of snow on the ground. I did hear on the radio today about 22 harleys doing a 16 mile ride on New Years Day with 4 degree weather. I know getting fresh air makes me feel better but . . . falling doesn't.
I found that eliminating the nightshade foods from my diet helped. I know a gluten free diet is also recommended. I'm celiac so I don't eat gluten anyway so couldn't say if it helps my RA. I have tried 5 dif meds with not much benefit but many side affects. Hope you feel better. Now is when I need to daydream about some of those great rides. Think Spring.

Wren said...

Aw, Terry, I'm sorry that the cold weather is affecting your RA so badly! It's hard enough when the weather is warm. I wonder if your medication not working as well as it might could be the reason that the winter is hitting you so hard?

I love your attitude, though. Making the best of the quiet indoor time, staying as warm and relaxed as possible, and paying attention to your diet, sleep habits and exercise can only do you good--and it's very cool that you're determined to do all three.

Here's wishing you a very Happy New Year, m'friend. Thanks for sharing that photo--I near snorted my coffee with laughter. Grin on!