I am scheduled for another Orencia infusion this coming Wednesday afternoon. I feel that I have given Orencia a fair chance, 10 infusions, and I am not doing any better. As scary as it can be switching medicines, its time for me to try something else. I am disappointed that the Orencia has not worked for me like it does others. I liked not having to give myself injections and the once a month schedule as well. However, if this is as good as it gets, just shoot me now because this is no way to live. I have hurt so badly at work the last two weeks, that I would literally come home and go to bed. The dogs don't understand why I don't want to play with them when I come home from work. My wife (an RN in ICU) sees me struggle just to walk, sit or stand, but I don't think she even fully grasps how intense the pain is at times. I expect my next weapon will be Humira, I will update you after I see my rheumatologist Wednesday.
By the way, in an earlier post, I told you about being allergic to bee and wasp stings. This is today, two full weeks after being stung. It is still tender if pushed directly in the center.
I got out this morning and took my bike for a nice 60+ mile cruise around town. I left the house early and headed over to a lock and dam on the the Arkansas river about 8 miles from our house. I watched some barge traffic on the river before heading on with my ride. I rode mostly dirt roads on the outer edge of town ... it's funny to see how many people were staring at me. Then it dawned on me, they aren't use to seeing riders with leathers, MX boots, chest protector, etc coming through town. It was a nice change of pace this morning, not having to load up and drive 30 minutes to ride.
I didn't really feel like riding today, but I made myself get out this morning, and enjoyed myself once I got about as far as ... oh ...our mailbox. I have been talking with Randall quite a bit about this lately. I am worse than I was two years ago, even this time last year I was still riding quite a bit of single track trail. I am going to try to ride every week while I am still able to ride. I can't imagine not being able to ride, but who knows what the future may bring. I would hate to look back two or three years from now and think, why didn't I get out and ride while I still could?