Monday, March 8, 2010

I'm Thankful For My Flare Up

In retrospect, I'm thankful for my flare up that I recently had.  It didn't hit me right away, but that was the first flare up that I have had in 7-8 months.  I was living in a state of constant flare everyday during this time, and this is the first flare that I have had since beginning my Orencia treatments.  It only lasted 4 days so for that I am also thankful.  Which leads me to another question.  At my last infusion I spoke with my rheumatologist about how I would have 2 really good weeks, 1 so-so week and 1 week where I hurt.  Obviously I am doing better, so I sit here perplexed.  Do I persue other options for my RA, or stick it out and hope the Orencia will continue to do better for me?

I had an interesting week last week, my daughter severely sprained her left ankle and was on crutches.  She had mid terms at college, so I drove the 80 miles north and dropped her off and picked her up from classes on my days off.  She is much better now, although her ankle is still swollen and bruised.  At least she is walking without crutches again.  I know all to well what it is like getting around on crutches.



I also was working on my bike in between her classes last week.  I now have my dual sport modifications completed.  I have to admit, it's kinda cool having a fully legal, tagged, off road race bike now.  I have been testing everything out around the house and have already received quite a few looks, even a couple of double takes.  I am putting it to good use tomorrow on a long dual sport run, that is if I can get out before the thunderstorms make it into our area.

9 comments:

Living It, Loving It said...

Good to hear you are feeling better. If Orencia is working now, I will stick with it for the time being. The Orencia will eventually lose its effect so you will have switch over soon anyway. If you are going to do a switch, I would wait until the weather warms up as the cold weather really bothers our joints.

Good to hear you spent time with your daughter but not good that she hurt her ankle. My toddler has a cast up to his shoulder because he has an elbow fracture after falling out of his playpen (he was trying to climb out.) Parenting a toddler is just as bad as psrenting a teen.

Again, Good to hear that you are feeling better. Take care.

Laurie Grassi said...

Hi Tharr,

Glad you're feeling better. Hope the weather is warming up for you the way it is for us here and that you can get out and enjoy yourself soon! :) Laurie

tharr said...

Lana, this has made me second guess myself on jumping to another med right now. Like you said, it will wear its welcome out before too long anyway.

Sorry to hear that your suicidal elf tried to fly. lol We pay for our raising, you know? Thats why my daughter was on crutches (again) last week.

tharr said...

Laurie, the weather has been great the last few days. It was 70 the last couple of days, it is raining now, but supposed to hit 71 tomorrow. I have my bike packed up and ready to ride tomorrow!

rheumablog said...

I'm glad that Orencia seems to be helping, Terry, even though you still have the occasional bad flare. Isn't it odd how we get nervy when a med actually works? We start worrying about how long it will keep working, and what we'll do when it stops, and try NOT to think about it because thinking about it might jinx the whole thing ...

Have a great time on your upcoming ride. And I hope your daughter's ankle heals up quick; it's just no fun having to get around on sticks. Bleh.
-Wren

andrew said...

Hey Terry. Your story with Orencia seems to mirror mine with Cimzia...less overall impact during the month than I saw earlier. And we started treatment about the same time. Does your doc see that this is fine and wants to keep you on it?

tharr said...

Wren, it is odd how we learn to react to our meds, certainly not normal thinking is it? Planning on having a good ride tomorrow with Race. Thanks, her ankle is much better in just a week. You're so right, crutches aren't fun.

Andrew, I spoke with my rheumatologist last month about how I am responding to Orencia (2 weeks real good, 1 so-so week and 1 week of hurting) and asked him if this was normal. He said no, but some patients do have the results that I am experiencing. He wants to give it a couple of more months to see if the warmer weather helps any, but then this week after actually having a flare up, I have realized it is doing more for me than I thought it was.
Have you spoke with your rheumatologist, if so, what are you planning on doing with Cimzia?

Leslie said...

wow! I love the bike! Awesome! We have had your pretty weather here as I am your neighbor (Arkansas)...:)...Its been great! Hope things level out with your meds. It seems all the DMARDs and biologics only last for a certain length of time. We have rain here now which is no fun on the joints! Can't win for losing sometimes lol

tharr said...

Leslie, great to hear from you. Thanks, this KTM is the best bike that I have owned. Spring is finally here, but with that come the storms as well. That's ok with me, I'll take thunderstorms over snow anyday! Oklahoma also had the first tornado in March yesterday, woo-hooo!