Last week was a very hectic week for me. It started with my first day off last week ... the hot water hose that runs to the washing machine blew. We had planned on going out of town but opted to stay home. I'm glad because in the short amount of time to cut the water off, roughly 90 seconds, there was already a half inch of water in the utility room that was running out into the kitchen. After getting the utility room dried out, buying new hoses and straightening the utility room back up, it was time for bed.
I got up Tuesday and went for my Orencia infusion. The infusion's usually don't bother me too much, however this one kicked my butt. I came home and was so tired, I thought I would lay down and take a quick nap. I slept 5 hours, got up and ate a sandwich, watched some tv and went back to bed at 9 pm. I slept 12 hours and woke up Wednesday pain free, but so fatigued, I could barely put one foot in front of the other. I talked to my rheumatologist Tuesday, while getting my infusion, and told him that I had noticed right after an infusion the first 2 weeks I felt great with no pain and little fatigue. Much better than I ever felt on Enbrel, however, the 3rd week it was wearing off, pain and fatigue were noticeable. But on the 4th week, I was just hurting all over. I asked him if this was normal and he said no, but some patients do react to it in this manner. He suggested that I give it 2-3 more months (this is my 6th month on it) and if after the weather warms up, it is still effecting me the same way, we will change meds. He said we have a lot of options and there is no sense in hurting half of the month.
I worked my normal 4 days last week (Thursday - Sunday 12 hour shifts) and this week I got moved to the front of the week so I am working Monday - Thursday. That will be 8 days in a row. I can make four 12 hour days ok, but I wear down a little bit more as each day passes. By the 4th day, I am often in pain and fatigued, but can make it. I don't know what I am going to feel like by the 8th day in a row.
The only thing keeping me going right now is that we have snow coming Friday, but Saturday and Sunday it will be in the mid 50's. At last, I can get back out and ride. Randall and I have mapped out a long dual sport ride that we may attempt to ride this weekend.