Thursday, October 22, 2009

Good News, Orencia Is Working

Good News. The Orencia is working. Bad news, we continue to be pummeled by rain and storms. We actually had 3 days without rain from Saturday afternoon until Tuesday mid morning. It was wonderful to see the sun and experience normal fall conditions for those 3 days. Sunday and Monday night I felt really good at work with minimal pain for a couple of rough nights on the press. I am now convinced that, if our weather pattern will return back to normal, the Orencia will help me. I even felt good enough to workout with weights yesterday before going back to work and am going to do some cardio tonight. It has been a while since I have felt up to a good hard workout and I have missed being able to hit the gym. I am proceeding cautiously with the gym, don't want to overdo it right away, but boy did it feel good to work the muscles a little bit!

I went in for my 3rd Orencia infusion today and am feeling good right now, despite the rain. The nurse that does the normal infusions was out today and the backup infusion nurse missed my vein the first time. No big deal. Then she missed the second time. OK, no big deal, lets just get it in this nest time. Nope. Change arms, Nope. The sixth time we finally see blood (no not hers) and everything went smoothly after that.

More Good News. I have a new job bid where I work. I am training to run the front end of the press. There is a lot more thinking involved with registering the colors on the jobs, QC checks, dye stains for coating, ink viscosity checks, etc, but it is far less physical than the job I have done for the last 7 years. I just hope I'm smart enough to do the job. The bad side is that I am training on days and after working 9 years of nights, I can not sleep longer than 3-4 hours at night. You would think that if you are dog tired that it would be no problem sleeping. Guess I'm just weird, I have no problem falling asleep ... but at 2-3 am, I am wide awake and can not go back to sleep.

More Good News Part 3. We are planning a good long dual sport ride for Tuesday. Randall and I are going to ride, or attempt to ride, a new loop that we think we can make in one day. It is 200+ miles and we believe that we can make it between gas stations if we ride conservatively enough. I am reminded of one of my favorite old sayings, "Bad Decisions Make Good Stories".


Anonymous said...

I'm so glad the Orencia is working for you. I have had 3 and nothing yet, still crossing my fingers.
Rain here and my hands are swelling but I'm going hunting tomorrow in spite of this RA crap. You guys have fun. It is always good to read your blog, gives me a little lift. Keep the rubber side down.


tharr said...

Phil, I hope it starts working for you soon. My rheumatologist told me that in 3 months you should see how much it will do for you. Hang in there buddy.

As for the ride, good advice. Randall drove this loop 3 weeks ago and said "I thought we had been in the middle of nowhere before ... not even close". He said it looked like a prime place for Saskwatch to live. LOL

Leslie said...

yikes...stay away from saskwatch land! lol!!! I'm glad to hear you are doing better! It sure makes a different to even be able to exercise. Good luck on the new job, that sounds great! Hope you can get some rest in the meantime...its important. Take Care

RA Guy said...

Thanks for sharing your news, it's always good to hear good news - especially when it related to the effectiveness of RA medications.

Best wishes for the job bid, and for the upcoming ride!

Cathy said...

Yay for you! I love hearing good news. Keep feeling better and good luck with the bid.

Anonymous said...

What a relief that the Orencia seems to be working for you, Terry! It's like manna from heaven when any of these drugs actually make a difference. Good luck with the job training, too -- you definitely have the smarts for it. Years ago I watched as my local paper (I was the editor at the time) was printed on a giant web press -- until that moment, I hadn't known how many people and what skill it took to run one of those magnificent machines correctly. I'm impressed. :o)

And man, it's tough when the nurse can't find a vein. Nothing like that good ol' pincushion feeling.

Best to you. Have fun on your ride.

Living It, Loving It said...

Awesome news! I start my Humira injections next week. I am also looking forward to improvement in my condition. Lately, I am always limping with my left leg, starting from my knee down, and I am not sure how much more I can take.