Tuesday, October 6, 2009

Back to Hurting

I have been feeling better and was encouraged after the switch from Enbrel to Orencia. My rheumatologist told me to give the Orencia six weeks to see an improvement and that in three months that I should see what it can do for me. I'm rather impatient, especially when it comes to pain, but after my second Orencia infusion, my feet and hands were not hurting as badly as they had been. Then Saturday night it started raining and we have had storms move through the last two days. I have been back to hurting, especially at work, climbing up and down the stairs on the press that I work on.

I am not giving hope in the Orencia, but I am disappointed that I am back to hurting so quickly with a couple of days of rain and storms moving through. I know it is too early to tell, but I was hoping that it was already working for me. I go in for my third infusion Thursday, then I will be on a once a month infusion schedule.

6 comments:

Leslie said...

hey Terry! I saw your bio on RA guy's blog. I haven't had a chance to read through your entire blog history yet but so far I'm enjoying it! I am 36 and a single mom living in arkansas with RA. I was recently diagnosed this past year. It's good to find other people who are going through the same journey or similar journey! keep up the good work! I am thinking of starting a blog too....think it would be a good way to get some thoughts out there ;)

Cathy said...

Well that stinks. I was hoping the new meds would work for you. Patience is hard....I keep reminding myself to work on it everyday.

andrew said...

It's been a while since I've read your blog and it's always good to connect with another guy with RA. Like you, Enbrel stopped working for me so I'm curious to see how Orencia works for you. I've started on a new med called Cimzia. We'll see how that goes.
Andrew

http://livingwithra.wordpress.com/

tharr said...

Leslie, its good to be part of the RA blog community. We learn a lot from each other and it seems to be therapeutic for me. If you drop back by, send your email address to tharr@wikianswers.com. I would like to talk with you.

tharr said...

Cathy, it does stink but in all reality, I was expecting it to work too quickly. If I still feel this bad in another 2 1/2 months, then I will be disappointed.

Andrew, thanks for stopping back by. Us guys with RA are few and far between. I will let you know about Orencia after I get some more time under my belt with it. Let me know how the Cimzia is doing for you too.

Anonymous said...

Terry
Tried the google account thing - didn't work, so I guess I'm anonymous.
I used to be a big bike rider, did some wrenching, and even some pedaling, but not much any more. Back home tonight from my third Orencia infusion, hafta say it's quicker than remicade and you dont have to stick yourself like enbrel, neither of which did squat.
So it's Tramadol, Arava, & prednisone and so long as I don't take the tramadol before I teach (flakey Phil), I can still get to work and get out and about. Bowhunting starts here in NY tomorrow and I will be out there even if I can't do much more than watch sometimes. The arava was awesome and then it backed off a bit and now my hands and wrists are burning like crazy. But the air is crisp, the leaves are beautiful and ice fishing is just around the corner. You hang in there bud. Twist that grip for me, I wish I could.

Phil